Why I Advocate for Chronic Pain Warriors

By Crystal Amon | PrincessCrystalSays.com

Living with chronic pain is a battle that most people never see. It’s silent. It’s invisible. It’s misunderstood. But for those of us who live it daily—or love someone who does—it’s a reality that never truly goes away. This is why I advocate for chronic pain warriors: because our stories deserve to be told, our struggles need to be seen, and our voices must be heard.

I Advocate Because I Live It

I’m not speaking as an outsider looking in. I’ve lived with the relentless grip of chronic pain, the kind that follows you from sunrise to sundown and often into sleepless nights. Mine came as a result of surviving stage 2B cervical cancer. The treatment saved my life, but it came with a cost: nerve damage, mobility issues, and pain that rarely lets up.

I learned very quickly how easy it is to feel forgotten when your illness can’t be seen. The world doesn’t pause for those of us moving slower. People don’t always understand when you cancel plans, need rest, or use a mobility aid on some days but not others. That’s why I speak out. That’s why I show up. Because chronic pain warriors need representation, respect, and resources.

I Advocate Because the System Often Fails Us

Medical systems aren’t always built to support chronic pain patients with compassion. We’re often treated with suspicion, dismissed, or told it’s all in our heads. I’ve been there. I know the courage it takes to keep fighting for answers when you’re exhausted. I’ve met too many people who are suffering in silence because they’ve been ignored or misdiagnosed for years.

Advocating is about shining light on those broken places—so others don’t fall through the cracks.

I Advocate Because Our Stories Are Powerful

Every chronic pain warrior has a story worth sharing. Whether it’s a single mom pushing through pain to raise her children, a veteran managing trauma and nerve damage, or a young adult learning to navigate life with a rare illness—they are all heroes.

When we tell our stories, we create awareness. We build community. We inspire change. And most of all, we remind each other that we’re not alone.

I Advocate to Give Hope

There are days when hope feels out of reach. Days when you’re stuck in bed, aching in places no one can see. Days when it feels like no one understands or cares. I advocate to be a voice that says: You matter. Your pain is real. And you are not alone.

I want others to see that even with chronic pain, life can still have beauty, purpose, and joy. Not every day will be easy, but every day you fight is a victory. And that is worth celebrating.

How You Can Help

You don’t have to live with chronic pain to support someone who does. Here are a few ways to be an ally:

Listen without judgment. Offer practical help (like a ride, a grocery run, or just sitting with someone). Respect boundaries and limitations. Share awareness posts and resources. Be patient. Chronic pain changes people’s lives—and their energy.

Join Me in the Fight

At PrincessCrystalSays.com and DragonStrongCircle.com, I’ve made it my mission to create safe spaces for healing, support, and storytelling. Chronic pain warriors need more than sympathy—we need solidarity. Whether you’re a warrior yourself or someone who loves one, I invite you to walk beside us in truth, strength, and compassion.

We are not weak. We are warriors. And I will never stop advocating for us.

With love and fire,

Crystal Amon

Founder of Princess Crystal Says & Dragon Strong Circle

Freelance Writer | Chronic Pain Warrior | Cancer Survivor

Copyright 2025